Carcinoid Cancer Foundation Sets Sights On Raising Awareness

March 3, 2009 at 11:00 am Leave a comment

Several high-profile cancers are infamous for being silent killers – but they are
not the only cancers that catch victims by surprise.
Carcinoid cancer can go undetected for many years. Over 90%
of all carcinoid/neuroendocrine tumor (NET) patients are
initially incorrectly diagnosed and treated for the wrong
disease. Carcinoid cancers are frequently diagnosed

Carcinoid and related neuroendocrine tumors (NETs) grow
slowly and are found mostly in the gastrointestinal system,
but can be in other body parts like the pancreas and lung.
It usually takes many years before they cause symptoms. If
the disease manifests in advanced stages, it can be deadly.
Caught early, however, carcinoid cancer can often be managed
or treated, an option not fully realized within the medical
community or patient circles, according to Sharon Devereaux,
the newly appointed president/CEO of the Carcinoid Cancer
Foundation(TM) (CCF, Increasing
awareness of this disease and opportunities for early
detection are an integral part of the Carcinoid Cancer
Foundation’s mission, and Devereaux’s initiatives include
intensification of efforts to accomplish these goals.

“Carcinoid cancer occasionally creeps into the headlines,
usually when some public figure is living with it or passes
away,” Devereaux says. “But that’s where the news value ends
because it’s perceived as rare – 110,000 U.S. patients are
experiencing carcinoid cancer today. However, new research
and anecdotal evidence suggests that it’s more widespread
than is documented, yet it’s tough to provide treatment
because established opportunities for early-diagnostic
testing don’t exist.”

Richard R.P. Warner, MD, Medical Director of CCF and one of
the world’s leading experts on these rare cancers, explains
“that although a number of new drugs are being developed and
tested, at present the only cure for carcinoid/NETs is
dependent on early detection and surgery before these
cancers have spread from their original site of origin.”

The CCF is a non-profit organization that strives to
encourage and support research, in addition to educating the
general public and healthcare professionals, about carcinoid
cancer and NETs. Recently, the CCF has drawn attention to
its cause through its “Zebra Ball – Stars for Stripes”
(, an annual benefit event held
at The Peninsula Chicago to support The Carcinoid Cancer
Foundation(tm). This year’s ball, so named because zebra
stripes symbolize “camouflaged” conditions, featured the
stories of carcinoid cancer patient Don Meyer, Northern
State University’s (Aberdeen, S.D.) basketball coach, and
cancer survivor Kari Jones of Indianapolis. The gala
coincided with Valentine’s Day, which has been designated by
Mayor Richard Daley as Carcinoid Cancer Awareness Day in

For more information or to donate, visit or

About the Carcinoid Cancer Foundation(TM)

The Carcinoid Cancer Foundation(TM) is a non-profit
organization chartered by the State of New York in 1968 for
the purpose of encouraging and supporting research and
education on carcinoid and related neuroendocrine cancers.

Carcinoid Cancer Foundation


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